Wednesday 30 July 2014

Magic moments:- when Arjan discovered how to roll (18months old)

We have been trying for months on end in fact, 18 months on end, to try and get Arjan to roll. Whether it was the physiotherapist, Tony, or myself we found it extremely difficult. He would cry, whinge and moan throughout which made it extremely difficult for us to do the exercises. After 18 months of crying every single day, even three times a day, we started to feel like we were fighting a losing battle. But then something amazing happened. 

One afternoon we went to visit Arjan's new born cousin. Arjan was on carpeted lounge floor where he had some of his toys around him just to keep them occupied whilst I was able to see my new baby niece. A couple of minutes later my three-year-old niece came running up to me saying " aunty, Arjan was in the fireplace!" Shocked by her comment I have turned around and saw him in the fireplace. I was a bit baffled to how we got there because even though he was only 18 months old he was just as tall as my 3year-old niece. And there was no way she would've been able to carry him. So I pick them up and put them back in the centre of the Lounge near his toys again. But as I was walking away from him I felt like I needed to turn around and that's when it happened. Arjan started to roll towards the fireplace again.  I couldn't believe what I was seeing. I've run across the living room into the conservatory and was screaming with joy at tony telling him what Arjan had done. 

Although I've can never bring back that moment where he first rolled I'm managed to film him the following day rolling. 

So here it is guys the day after Aj and discovered how to roll. I hope you find joy in watching this video and see that miracles can happen. 

Enjoy ! 



Magic Moment :- Able to suck,swallow and breathe


From the moment Arjan survived in intensive care, we were told that he will have a lot of problems. Of course i know understand that all medical staff have to give you the worst case sinario however, saying that they alway did have faith and hope in how are Arjan will be in the future. NO-ONE can predict the future so we decided to take it a day at a time. Taking note of every single goal Arjan reached

sometimes as parents we do get deflated and wonder why and what is the point.......until something like this happens


I thought i would share some moments will you all starting off with this gem. Arjan had an NG tube for meds and feeding as the S.A.L.T team believed that after nearly 2weeks of being on a ventilator, he had lost the ability to perform the motion of suck,swallow and breathe (something we all do when we drink).........and then he did it. Please do ignore my silly talking. Don't know what I was going on about. Think I was abit too excited about what had just happened. 

enjoy peeps!




http://youtu.be/gY0N5EvE6oE

Thursday 3 July 2014

Best car seat for children with special needs

One of the hardest things your have to deal with is making sure that any seating equipment our children are in is safe and secure. Especially around their hips, torso and head. Good support and positioning is crucial . I mean the last thing we want to worry about whilst we are driving is to see our child flop thru the rear view mirror. But having a seat that is permently facing forward can make our backs very sore 


Well no need to fear- this beauty is here! (Well in the shops anyway) 



Meet the best thing we have brought for Arjan in the last 2years- the MAXI COSI AXISS

After Arjan had grown out of his first car seat before we had planned we were researching for a while for a seat that would meet his and out needs. And this seat won - hands down!!


The best thing about it is it swivels towards the door so you can place your child in securely without having to twist yourself! 


Modelled by my handsome choppy! 


The head rest is easily adjusted by pulling it up or down - very easy

There is a slide button underneath the seat so you can adjust if you want the seat to turn either left or right. 

AND AND!! Wait for it!! ........ It has 3 reclining settings - yes you can say it ......WOW!!! 

With the max weight being 18kg you can have this seat for a very long time. Arjan sits in it so well and it really does support his body well. 

If you would like one Mothercare are price matching it at £165 (rrp £225) 
I know it's abit pricey but I promise you- you won't be disappointed